Please see below for upcoming fund raising events related to the branch.

If you are planning your own event, would like to help out at any of these events or have your own fundraising ideas that you need help with then please contact the branch and we will help any way we can.

John O' Groats to Land's End 2018

Committee member, Mark, will be attempting to cycle the length of the UK over two weeks in June to raise funds for Huntington's Disease!

The route will be from John O' Groats in Scotland to Land's End in Cornwall, a distance of over 950 miles!

If you would like to sponsor Mark and send messages of encouragement you can do so at

Northern Soul Night Saturday 19th May 2018

Our branch treasurer Linda is organising a Northern Soul Night with DJ Steve Crawshaw on Saturday 19th March. This will be held at WETHERBY SPORTS ASSOCIATION, Lodge Lane, Wetherby LS22 5FN from 7pm until midnight.

As well as a fantasic night of Northern Soul music there will be a raffle with some amazing prizes. This promises to be a brilliant night with all proceeds going towards helping families affected by Huntington's Disease in the West Yorkhire region.

If you would like tickets please call Linda on 01937 587210 or contact the branch here. To download the flyer click here

We hope that you can make it and look forward to seeing you on the night.

London Marathon 2018

Our West Yorks HDA Branch Vice-Chair, Jo, will this weekend be taking on the incredible challenge of running the London marathon to raise funds for Huntington's Disease!

Huge well done Jo and good luck from all of us!

If you would like to sponsor Jo and encourage her with her fantastic effort, you can do so at

Yorkshire Grand Depart Challenge 14th - 15th June 2014

Branch member Mark Armitage will be attempting to ride the Yorkshire stages of the 2014 Tour de France with a group of friends.

The team will ride each stage back to back, as the professionals will ride, over the weekend of 14th and 15th June 2014. This is no mean feat as stage 1 is 118 miles with stage 2 at 124 miles (and there will be lots of hills!)!

If you would like to sponsor the team you can do so at If you are unable to sponsor the team then please help by sharing the link with friends and family.

Coast to Coast 3rd - 4th May 2014

I am riding the coast to coast on the 3rd-4th May from Morecambe to Bridlington. It is 170 miles in total, with the first day including some serious gradient. This is the biggest challenge I have set myself so far and I would really appreciate your help to push me along with my training.

Check out the route here:

You can sponsor me using the following link:

Thanks ever so much for your support, Stuart Watkins.

UPDATE - Great North Run 15th September 2013 - UPDATE

Carl Denton

Branch members Anne and Alan Denton's son Carl completed the Great North Run on 15th September in a fantastic time of 1:56:10 and came 12,352nd out of 56,000! Afterwards he said "Aching now though but glad I did it for Huntingtons."

If you would like to sponsor Carl his JustGiving page is still open (20th September 2013) and available at

Well done Carl, that's a superb achievement and you smashed your fund raising target!

  • Carl 1

    Carl 1

  • Carl 2

    Carl 2

  • Carl 3

    Carl 3

Jo and Clare

Jo and Clare also completed the Great North Run on 15th September and have provided an account of their day below. Well done to you both on your fantastic efforts and for also smashing your fund raising target!

Well we did it! Completed the Great North Run despite the rain and heavy wind!. Jo Hague and Clare Braithwaite are sisters whose Mum Helen has HD. Jo is a seasoned marathon veteran but for Clare it was the first time that she had stepped up from 10k to run a half marathon.

There should have been a group of us running but various injuries put paid to that. Clare also suffered from shin splints earlier this year. However Jo and Clare got to the start line and despite the forecast at the start it was dry. 56,000 people lined up and we headed off!

Highlights were being on the Tyne Bridge when the red arrows went over, some fantastic fancy dress, the fabulous atmosphere made even better by the locals out with jelly babies and oranges and even beer! A couple of great star spots over the weekend - Mo Farah ran past us on Saturday evening on his pre race warm up and at mile 12 as we called at the last water stop Tanni Grey Thompson was volunteering giving out water. Then out of the 56,000 runners only 17 were running for the HDA and a lovely lady who was one of them ran past us at mile 8. So hello to her! And finally the red arrows starting their display at South Shields just as we finished.

Thanks to everyone who sponsored us and to Dorothy and Paul for the loan of their beautiful flat. Clare has even said she might tackle another half but its a definite no for the marathon!

  • Jo and Clare

    Jo and Clare

  • Clare


  • Jo


Great North Run 15th September 2013

Hi, as many of you know we've madly signed up for the Great North Run and with not long to go and various injuries we're in need of some motivation so please help by sponsoring us. Mine and Clare's Mum has this disease and is the inspiration for us getting running to raise some money.!

Your money will go to a very worthy cause. Thanks for supporting us xx (Jo, Deputy Chair, West Yorkshire Branch)


UPDATE - National 3 PEAKS Challenge for Huntington's 22nd June 2013 - UPDATE

Jackie completed the National 3 Peaks Challenge in June and by all accounts it certainly was a challenge (ordeal?) so well done Jackie, please see the following for her account of what she endured to raise awareness of and money for Huntington's Disease.

I just wanted to say thank you so so much for sponsoring me for the national 3 peaks challenge which I completed at the weekend. I honestly didn’t think it would be as hard as it was but I did it!

There were 14 of us from work which started out to do the challenge – the team from work were raising money for Tickled Pink and myself for Huntington’s. Travelling from Leeds on the Friday, we were split into 4 seven seater cars which gave us a bit of room to spread out in (required with 3 changes of clothes!). Unfortunately we got the short straw as ours smelt of dog and the charger didn’t work, meaning we had no sat nav and were to charge our phones. But it was all good as I couldn’t have asked for better company and we had a lot of laughs throughout the highs and lows of the weekend.

We started to climb Ben Nevis at a very early 5.45am on Saturday morning to beautiful sunshine and a few clouds, which was great as it had the best views of all 3 mountains. As we got near the top, it started to rain which was a bit of a theme for the whole weekend. Then closer to the top there was snow… It was like being on a skiing holiday which I didn’t expect in the middle of June! So we made it to the top and back down again. It was really busy because it was the longest day and people (us included) had hoped that being June the weather would have been good. No such luck! My dad and Alison very kindly came to meet me at the bottom and waited in the (by that time) torrential rain (thank you both!). A quick hug and then we were all back in the cars to McDonalds to get changed in the smallest toilets in the world. I had to get out of the wet clothes pretty sharp.

We then headed down to the Lakes to do Scafell Pike. Some of our group had got injured at Ben Nevis and one of the leaders had stopped to help someone from another group as she had been abandoned by her group. This meant we didn’t get down to Scafell until around 7pm. The rain was chucking it down when we parked up, it was cold and grey and we were all looking at each other with a face of 'what on earth are we doing'! We finally mustered up the energy and got out of the car. Once you're wet, you're wet so you just have to embrace it. By this point we were down to 12 walkers. I had climbed Scafell as one of my practise walks a few weeks earlier and for the people that came with me on it, they will agree with me that the weather that weekend was bad. Well that was nothing compared to what I was about to experience this weekend! The rain just kept on coming down the whole way. I wasn't too far from the top and I started to get chilly so my colleague helped me take my fleece out of my bag. Then I tried to zip up my waterproof jacket and after 3 attempts, I realised the zip had broken. My strap from my rucksack held it together (just!) and then it started to hailstone (along with the sideways wind). I have to say this was the lowest point for me of the whole trip. But I just kept thinking about the money I had raised and I kept on going. Then it started to get dark so the whole way down we had to wear head torches. At one point we managed to veer of the path. There was no-one else around. Luckily our team leader went off and found the correct way. It was a bit scary. Then we walked down with caution as the rocks were very slippery. Finally we got to the bottom all frozen to the bone. We got changed in some horrible toilets with no lights which looked like they hadn't been cleaned for weeks and got back in the car. I fell asleep but it was about 12.30am at this point. We stopped at some services on the way but I couldn't get out the car.... Tiredness had taken over. Then our driver was feeling tired so I chatted to him to keep him awake as we drove to Wales.

We got to Snowden around 7am and heard from some of the other cars that people weren't going to do the last one as it was rainy and windy. My knees were hurting but I wasn't going to give up now. So 9 of us started the walk up Snowden. The weather at this point was pretty kind to us. Then as we got near the top, people coming back down were warning us that once you get to the summit, the wind was about 90mph and it's rainy. Ok this was bad but surely it couldn’t be as bad as Scafell?! So I prepared myself for the worst and coming over the summit I thought I was going to get blown off the top! My boss had to hold my hand at one point as I couldn't stand up - embarrassing! My waterproof cover for my rucksack blew clean away. My legs heavy, I walked as fast as I could and got to the top. I can't begin to explain how happy I was at this point. I had done it! There was joking about getting the train back down from the summit but we had come this far, we couldn't do it! So we started to walk back down, trying to ignore the pain in my knees and the rain which decided to join us all the way back to the car.

Once I'd got changed I got myself back in the car and fell asleep again. Feeling very delirious from about 7 hours sleep over 2 nights, I think my experience at festivals helped me massively along with my gym instructor making me do interval training and doing the evil big step machine.

So now 2 days on my legs are starting to feel better and I managed a pilates class today which was good. I am still very tired so I am hoping that this email makes sense!

Thank you to everyone who gave me support on Facebook or by email or texts. I couldn't have done it without you. Would I do it again? Erm I don’t think so!

Most importantly I'd like to thank you for sponsoring me. Your money will make a lot of difference to people affected by Huntington's and hopefully one day the clever people out there will find a cure for it.

Thanks again, Jackie x

PS I have a few photos on Facebook, you don’t have to have an account to look at them, just click on the link below.

National 3 PEAKS Challenge for Huntington's 22nd June 2013

Hi I’m Jackie and thank you for reading my story. It’s been three years since I last did any fundraising and after going from couch potato to half marathon runner, I wondered what challenge I can set myself this time. Armed with my new special insoles and regular trips to the chiropractor, I have signed up to do the national 3 peaks. What is this I hear you ask? Well the challenge involves climbing the 3 highest peaks in the UK. Starting at Ben Nevis in Scotland at 5am, traveling straight onto the Lakes to complete Scafell Pike and finally to Snowden in Wales. The driving route is 462 miles long and I‘m aiming to complete it in 24 hours. So the challenge is tough, coupled with sleep deprivation and a dodgy back, it’s going to be physically and mentally draining but I can do it!

Apart from being a bit daft (no comments please!), the main reason I’m doing this is to raise money and awareness for Huntington’s Disease (HD). My mum sadly passed away from this in her late forties. HD has always been and will continue to be a big part of my life and yet lots of people have still not heard about it. With your support, not only can we help to find a cure, continue to provide a service for families and carers, we can also help to create awareness. The more people that know about it, the sooner it can stop being passed on from generation to generation.

So this is going to be a big challenge. Over the next couple of months I’ll be doing lots of training in the evenings and weekends, even curbing drinking (yes really) all to give me thighs of steel to help get up and down those mountains (something like that anyway!). So please dig deep, I know everyone is strapped for cash at the moment but anything you have will be greatly accepted. Thank you for your support.

Jackie x